The following is a list of resources I’ve compiled through research. My passion is to promote awareness and understanding in regards to RSD(S)/CRPS, Reflex Sympathetic Dystrophy Syndrome, also known as, Complex Regional Pain Syndrome and other illnesses and information directly or indirectly associated to it. Some links may be repetitive. There is still no cure to date. ~twinkleEKV/ellajC/rsdcrpsfire
RSD CRPS News
http://www.rsds-crps-news.blogspot.com/
American Pain Foundation
Log in Page
http://painaid.painfoundation.org/login.php?page=
United States Department of Human Services
http://www.hhs.gov/
Clinical Trials.gov
http://clinicaltrials.gov/
RSDS – CRPS News
http://rsds-crps-news.blogspot.com/
Psychiatric Times- RSD
http://www.psychiatrictimes.com/showArticle.jhtml?articleID=189500108
NIH Pain Consortium
http://painconsortium.nih.gov/pain_index.html
National Institute of Arthritis and Muscularskeletal and Skin Diseases
What is Fibromyalgia?
http://www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm
Coalition of professional and voluntary organizations concerned with the programs of the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
http://www.niams.nih.gov/hi/coalition/resources.htm
Reports
Congressional Justifications
http://www.niams.nih.gov/ne/reports/congree_rep/cj2001/significitems.html
WorkCompCentral
http://www.workcompcentral.com
Workers Compensation Action Network
http://www.fixworkerscompnow.org/
Lawyers.com
Workers Comp
http://www.lawyers.com/lawyers/C~P~California~Employment~Workers%20Compensation~LDS~City.html
Research Legal Topics
http://www.lawyers.com/legal_topics/browse_by_topic/index.php?site=&eid=
Support and Chat Groups
In His Hands with RSD
http://groups.msn.com/InHishandswithRSDandChronicPain
Pain Pals
http://www.angelfire.com/me2/rsdpainpals/links.html
Yahoo RSD Groups
http://groups.yahoo.com/search?query=RSD
Pumpsters (Intrathecal pumps)
http://health.groups.yahoo.com/group/pumpsters/
I Village RSD Chat Community
http://messageboards.ivillage.com/iv-bhrsd/
Social Security and Workers Compensation
National Organization of Social Security Claimant’s Representative (NOSSCR)
http://www.nosscr.org/
AFL/CIO Web Site
http://www.aflcio.org/
All 50 States
http://www.comp.state.nc.us/ncic/pages/all50.htm
Injured Workers of America
http://www.injuredworkers4change.org/injured.htm
Job Accommodation Network
http://janweb.icdi.wvu.edu/
Workers Comp Rx
http://www.workerscomprx.com/main.asp
Pain
Central Pain Syndrome Alliance
http://www.centralpain.com/
Pain and Health
http://www.painandhealth.org/
Rehabilitation Facilities
http://www.carf.org/
Office of Rare Diseases
http://rarediseases.info.nih.gov/
National Foundation for the Treatment of Pain
http://www.paincare.org/
NINDS
http://www.ninds.nih.gov/disorders/reflex_sympathetic_dystrophy/reflex_sympathetic_dystrophy.htm
NIH Pain Consortium
http://painconsortium.nih.gov/
NORD
http://www.rarediseases.org/
Partners Against Pain
http://www.partnersagainstpain.com/
Pain.com
http://www.pain.com/
Health
NEADS (Dogs for Deaf and Disabled Americans)
http://www.neads.org/index.shtml
CareGiver.com
http://www.caregiver.com/
RSD Org (Directory)
http://www.rsd.org/index.asp
Sympathetic Dystrophy (Directory)
http://www.tunu.com/sear/r/e/Reflex_Sympathetic_Dystrophy.html
Associations
American Acadamy of Physical Medicine and Rehabilitation
http://www.aapmr.org/
American Acadamy of Pain Management
http://www.aapainmanage.org/
ACPA (American Chronic Pain Association)
http://www.theacpa.org/
American Pain Foundation
http://www.painfoundation.org/
APS (American Pain Society)
http://www.ampainsoc.org/
IASP (International Association for the Study of Pain)
http://www.ampainsoc.org/
Medical Societies
ASA (American Society of Anesthesiologists)
http://www.asahq.org/
Diplomats of the American Board of Pain Medicine
http://www.abpm.org/diplomates/index.html
PainEDU
http://www.painedu.org/
National Hyperbaric Oxygen Therapy
http://www.rsdtherapy.com/?gclid=CO6R4o-Ip4UCFQvOJAodNShW0A
Informative Links
RSD Advisor- http://www.rsdadvisor.com
Clinical Research Studies- http://clinicalstudies.info.nih.gov/detail/A_2000-NR-0200.html
Tame the Pain- http://www.medtronic.com/neuro/ttp/index.html?c=overture_ppc&kw=rsd
American RSDHope- http://www.rsdhope.org/
Aware RSD- http://www.aware-rsd.org/
Neurology Channel- http://www.neurologychannel.com/rsd/
Reflex Sympathetic Dystrophy Syndrome America- http://www.rsds.org/index2.html
Microsurgeon.org- http://www.microsurgeon.org/rsd.htm
AboutRSD- http://www.aboutrsd.com/
Pain.com- http://www.pain.com/
RSD Online- http://www.rsd-online.org/
Reflex Sympathetic Dystrophy Association of California- http://www.rsdsa-ca.org/
Treatment, Education and research- http://www.rsdrx.com/index.html
RSD Friends- www.rsdfriends.org
RSD Info- http://www.rsdinfo.com
RSD Awareness- www.rsdawareness.com
RSD Escape- www.rsdescape.com
Sympathetic.org- http://www.sympathetic.org/
RSD Foundation- www.rsdfoundation.org
Podiatry Channel- http://www.podiatrychannel.com/rsd/
RSD Care- www.rsdcare.com
For Grace.org- www.forgrace.org
California RSD Lawyers- http://www.california-rsd-lawyers.com/
National Institutes of Health
http://www.nih.gov/
Division of Thoracic & Foregut Surgery
http://www.stronghealth.com/services/surgical/thoracic/RSDS.cfm
Sudeck`s dystrophy
http://www.sudeck-dystrophy.com/
Pain Defeat
http://www.paindefeat.com/wiki/PDFT/RSDS
Your list is a great resource. I have discovered a lack of information for caregivers of RSD/CRPS on the web, so I have started a blog.
Comment by Liz — February 1, 2007 @ 3:38 am
Greetings Liz
Thank you! I have spent months researching these sites to compile this list. It is my hope that others find the information they need here. It is my continued passion to promote awareness for RSD/CRPS sufferers. ~smiles
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Why not add this site to your list? It is full of good information, research, news. treatments and survival tips. It is the Canadian organization which helps those in canada.
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